IGARD, Ore. (KOIN) — Cole Randall only lived 11 weeks. But those 11 weeks changed his parents lives, who then set out to help battle the disease that took their baby’s life in 2012.
Cole had spinal muscular atrophy — SMA — which is a genetic disorder that affects the control of muscle movements.
“The way we describe it is it’s like ALS but in infants,” Dave Randall told KOIN 6 News, ” but the onset is much earlier and much more severe.”
Shawna Randall said a doctor told her Cole might have SMA. “Now, don’t go Google it, but I think that might be what it is,” the doctor told her.
So, she Googled it, and found there is “no treatment, no cure, and the life expectancy is 2 years maximum.”
They decided to do something about SMA and in 2014 began the Cole Parker Randall Foundation to, as Dave said, “raise awareness of the Number One genetic cause of mortality in infants.”
To that end, they are sponsoring a golf event and auction at The Reserve in Aloha on Saturday. Among the items up for auction are an autographed Tennesse Titans jersey from former Ducks Heisman Trophy winner Marcus Mariota, an autographed baseball from Robinson Cano, wines, craft beer and many other donated items.
The foundation has previously made grants to the OHSU Doernbecher Children’s Hospital and the OHSU Division of Pediatric Neurology.
KOIN 6 News will have more information about the Randalls on Monday.